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Hello, I wrote my brothers story a while back. He is a football coach in Hobbs, New Mexico. Steve just finished his last round of Chemo last week. Of course, just like the last two rounds, he ended up in the hospital. He has lost about 60 pounds. No more football body. But this past Thursday he recieved the results of the last CT Scan. NO SIGNS OF CANCER!!! This was such a great surprise. The doctors thought they would have to operate on his lymph nodes, but the cancer that spread into his lungs and lymph nodes is gone!! He is still in the hospital because he can't keep any food down and his white blood counts are way down. He told me today, he probably won't be able to get out of the hospital until the end of next week. Man, is that 4th round a booger or what? He still has to get his last Blio on Wednesday. But his white counts are up to 700 today...so they are climbing. He got the mouth sores again. Let me just say, I truely believe in the power of prayer. Steve was on several prayer lists across the nation. I know some of you were praying for him too. Alot has happened since this cancer scare...My Dad and brother are much closer now and even my Mom and Stepmom haved prayed together. Steve is definately closer to God too. I know without a doubt that Steve will be a testimony for his high school students. When I was in Clovis this week (by the way I went with Steve to his first chemo and he still looked like a football player back then, this time....it was very different) My brother looked liked a prisoner of war or something. But this is a small price to pay for his life. He is very grouchy to boot. BUT, the cancer is gone!!! So all of you guys who are worrying and to all of you loved ones that are worried about that guy in your life with this disease....hang in there and never stop praying. There is a purpose. Maybe God just needs you to be a little closer. It is up to everyone of us to tell whoever you meet about this type of cancer. I guarantee if you tell someone....it doesn't matter who...everyone knows someone this disease can strike....they might catch it soon enough to save their lives. Teenage guys don't want to talk about stuff like this...but I guarantee they will check themselves. It might just save their life. Anyway....thank you so much for this webb site. I am thinking about all of you and if you need to chat...email me. God Bless!! Tracy Hill <Tracyhill@aol.com> Phoenix, AZ USA - Monday, May 31, 1999 at 21:58:40 (GMT) Lance's story got me to schedule an exam by a physician as soon as I noticed a small lump in my scrotum. Results: Negative. I breathed a major sigh of relief that morning, and thanked him, silently, for pushing this issue. Greg Tutunjian <gat@javanet.com> Newton, MA USA - Monday, May 31, 1999 at 14:21:10 (GMT) Hello men, I am a surgeon in Chicago. My very best friend was diagnosed with advanced TC back in November, 1998. He has undergone the standard chemo first, and subsequently, some alternative chemo. The abdominal tumor has significantly reduced, and the lung mets are disappearing , as well. We are heading to Indiana 6/1/99 to meet Dr Einhorn, et al. My question deals with whether salvage chemo vs stem cell/transplant vs RPLD? Please comment. Thanks IMMENSELY. Sal Moffa <SMMoffa@aol.com> Elmhurst, IL USA - Monday, May 31, 1999 at 04:50:19 (GMT) I lost my childhood friend and fiancée to TC on June 4, 1998; he was only 32. I am having a very difficult time trying to understand how TC could not be detected in his case. My fiancée was diagnosed on May 29, 1998, and died six days later at a local Hospice House. Prior to the diagnosis, he was hospitalized since May 7, 1998, for possible osteoporosis. I do not understand how his personal physician and the doctors at the hospital failed to find any signs of cancer. My fiancée was born with one undesended testicle (which consequently turned cancerous). He did have surgery around the age of twelve to descend the testicle, but to my knowledge he was never instructed to perform monthly exams. His parents were never told about the higher risk of cancer. How could this serious, but treatable cancer, go undetected? While he was in the hospital, every possible blood test was performed, MRIs of his entire body were taken, x-rays, and he needed several blood transfusions. Also, he was catheterized, so how could a nurse miss the swollen testicle? If anyone has any information they can offer me about TC and its various forms, I would appreciate a reply. Also, if anyone has any advice, spiritual insight, a similar story, anything…please write to me. Susanne <susannem@aristotle.net> Little Rock, AR USA - Sunday, May 30, 1999 at 19:53:19 (GMT) I'm a 38 year old father of 2 stationed at Great Lakes, Ill. I listened to the brochures and doctors and started self exams as soon as I was told I needed to (about 30y/o). 6 years ago I found a small lump on the surface of my right testicle and reported to medical. Did I mention I'm active duty Navy ?! I was told not to worry about it because it was probably a cyst. "Come back if it starts to get larger" the doctor told me. Well 6 years later, numerous "don't worry about it"s, 2 addition lumps, continuous enlargement w/ vascular intrusion seen on the ultrasound...I am going under the knife on the 1st of June. My cares and worries are in the Lords' hands and I am thankful for the information I found on your webpage. All of you take care, you are in my prayers. I'll post again when I know more. Gary Thielecke <sardogt@aol.com> Fort Sheridan, Il USA - Sunday, May 30, 1999 at 11:29:39 (GMT) I'm 32. I had an enlarged testicle (egg sized) for over a year. I really didn't think it was cancer so I ignored it. (Stupid, huh?) I just thought it was the result of getting hit in that area. Well, when I finally had an exam done the look of concern on the doctor's face was something I'll never forget. Things moved quickly after that: bloodwork, ultrasound, urologist, surgery, urologist again, CT scan, and finally oncologist. Luckily for me my cancer (seminoma) was confined to my testicle. My Bloodwork and CT scan were clean. Surgery (IO) was my only treatment. I was very fortunate, despite my ignorance. Craig Robison <crgrbsn@gateway.net> Orland Park, IL USA - Sunday, May 30, 1999 at 02:44:12 (GMT) I DO NOT KNOW IF I HAVE TC, BUT I HAVE BEEN OFFICIALLY DIAGNOSED WITH LOW TESTOSTERONE. I AM TRYING TO REPLACE MY FEAR WITH INFORMATION, AND I THINK THAT THIS IS A WONDERFUL WEB-SITE. SINCE I AM THE BEGINNING OF MY JOURNEY TO WHO KNOWS WHERE, MY MESSAGE IS BRIEF. I DO HAVE ONE QUESTION: WHAT IS THE COROLLATION BETWEEN DIABETES AND TC? Phil Borden <orgnlpanke@aol.com> Washington, DC USA - Friday, May 28, 1999 at 21:00:34 (GMT) I'm 43 years old, maried with 3 children two in college and an 8-year old. I had my left testicle removed on 4/15/99. My CAT scans and x-rays do not show any other problems. (I'm stage 1) The lab report indicated that I had a seminomas tumer, however my AFP alpha-fetoprotien levels were elevated. My APF loevels were 9 prior to surgery, 11.5 3-weeks after, 9.5 4-weeks later and I'm awaiting my latest blood tests for AFP and HCG. The lab has gone back and re-sectioned the tumer twice looking for non-seminomas cancer but hve not found any. They are currently doing a stain test on the tumer for AFP is present. They have tested my liver functions and I do not nor have I had hepatitis (SP) and my liver is working normal. Based upon the results they (we) (I) will deside what to do next. Do you have any information on what is normal or abnormal AFP levels? Also any causes of elevated AFP levels to check on. Frank Mace <frank.mace@searbrown.com> Troy, NY USA - Friday, May 28, 1999 at 19:31:58 (GMT) I'm a 26 year old survivor of TC. In an effort to expand the awareness level of our cancer,once a year I speak infront of my High school. Tomorrow morning I will speak to the Senior Boys about being aware of their body and to see a doctor if they think something may be wrong with them. I tried to get CBS morning show to do a piece on it but they said that this topic is just not viewer attractive. This effort to get awareness to more then a few people is very difficult. I'm asking for help or ideas on how to get our cancer to the awareness level that breast cancer is at. I'm willing to go to great lengths to achieve this goal. Thanks! Dave Ollendike <david.ollendike@aig.com> ny, ny USA - Wednesday, May 26, 1999 at 17:04:23 (GMT) I'm a 46 years old patient with testicular cancer,(Teratoma plus rhabdomyisarcoma), my right testis containnig the tumor was already removed by inguinal orqueoctomy one an month ago, CAT's performed one and a half month ago, and a week ago shows four small nodules in the lungs(Periferial), no presence in the peritoneal lymphatics, and no spread to epiddidimos and spermatic cordon, my Doctor suspects metestasis of one of the two types of cancer to the lungs, they show almost no diferences in large between the two TAC's, the largest one is in the left lung (about 1cm of diameter, my doctor suggest me to perform four cycles of Chemoterapy (BEP), (Einhorn Regime), an repeat the TAC after two cycles to see if the suspectes tumors are responding to the chemo, if they d'ont respond they problaby are the second type of cancer,i.e.(Rhabdomyosarcoma), and I should be treated by surgery to remove the nodules,¿what are my Chances that these nodules could be teratoma or/and rhabdomyosarcoma?, ¿What are my chances of success of the treatment and my survival after the chemoterapy?, ¿there are alternative treatment to chemo and surgery,i.e.(Shark Cartylage)e.t.c.?, because I'm afraid of the side effects after the chemo?, can you send me any information that can be helpfull in my case, thank you very much for your attention, I'm looking forward for you promptly answer. Best Regards Frederick Pohl Frederick Pohl <svenhassel@starmedia.com> Caracas, Venezuela - Tuesday, May 25, 1999 at 13:40:00 (GMT) My name is Steven and I just turned 39 on May 6th. How many of you thought that you were too young for all this? I had an undescended testicle lowered with surgury when I was 9 years old. I had it removed with surgury on 5/18/99. Ultrasound found a mass on the testicle which was painful(not the norm). I found out today, 5/24/99, that it was a malignant seminoma that seemed to be confined to the testicle. I'm to get a Cat-Scan and several X-Rays to confirm this diagnosis. I haven't been concerned with present events or with what the future may bring because God is in control of all things. "Don't worry, be happy" is the reality when you trust in Jesus Christ with all your heart, soul, and mind. My prayer tonight and each night to follow will include all those who have written who are in need of physical and/or spiritial healing. Praise God and God Bless! Steven R. Johnson <isellhouses@msn.com> Palm Bay, FL USA - Tuesday, May 25, 1999 at 03:11:28 (GMT) Hi, I'm in the middle of my treatment. I'm happy to have the possibility of having information about what Y have. I know that it will be a long journey but also that ther will be a lot of positive side to it. Thanks for being there! Frederic <fredgagnon60@hotmail.com> Chicoutimi, Qc Canada - Monday, May 24, 1999 at 08:15:57 (GMT) Hi my name is Robert I've got to say this a great site to visit. I am 6'5" 300lb Parts manager. I do a lot of lifting so when I found a lump in my right testicle I just thought it was caused from the lifting. I went about 6 weeks before my wife made me an appointment with my Dr. I saw him on a Monday he sent me for an ultrasound where they found a golf ball size tumor in my right testicle. It was malignant so off I go to the oncoligist. He decided to monitor me for a while. At the same time I was going through this my grandmother was dying from lung cancer. My grandmother died 04/01/98. On 04/22/98 I had to start 9 weeks of chemo. That was a long 9 weeks but I was very lucky I never got sick from the drugs. Other than looking like a dog with mange and being tired I was ok. After finishing that 9 week period on 06/01/98. I was doing pretty good. Then in November The CT scan found another tumor in my chest. So I had to undergo surgrey for that inwhich they removed the tumor and all the Noids. So right now I still kicking. My motto is Cancer is not going to slow me down only god can do that. Thanks for this site to visit other people with the same problems. Everyone keep on keeping on. Robert Prine <RCPrine3@aol.com> Nunnely, TN USA - Monday, May 24, 1999 at 02:29:03 (GMT) Thank you! My son Nicholas, age 18, is going through this. Surgery was last week and this week he has had CT Scan in the abdominal area and chest xray. Kay Chase <KChase5609@aol.com> Naples, FL USA - Saturday, May 22, 1999 at 10:09:54 (GMT) My son discovered he had TC and is now undergoing treatment. He suggested this site to help us understand more. Thank you so very much. Jerry Palmer Gerald W. Palmer <jerrylibjessie@msn.com> Nashville , TN USA - Thursday, May 20, 1999 at 01:00:13 (GMT) On Dec 14, 1998 my husband was diagnosised with TC. Prior to that i had noticed a problem with his right testical and encouraged him to goto the doctor and his response was lets wait and see. Well being a nurse i decided to make his appointment for him and so i did. But a trip to the ER(he thought he had a hernia)sent us to a surgon and he detected the problem. He sent us to the urologist 2 weeks early(thank the Lord for that). After an ultrasound Randy(my hubby) was diagnosed and had the right testical removed. He then faced 4 weeks of radiation treatments that made him very ill with neasua and diahrrea. He is much better now that all the treatments are over but he still fears every pain in his body is cancer. So far all tests are back to normal but he can't get over the feeling that every pain is cancer. I don't know how to make him feel otherwise. Any suggestions would be a great help. I'm worried about him and falling into a great depression over all that has happened to him. His family doctor has put him on antidepression and thaqt has seem to help some but he still seems depressed. Help! I did not go into all the details of his TC because he posted his story here earlier this year. Thanks you for this page it helped my husband deal better with his TC. Samantha Cummings <samijean@hotmail.com> Henderson, Ky USA - Wednesday, May 19, 1999 at 15:14:04 (GMT) I am a 28 year old single male diagnosed with pure seminoma. I had my left RO surgery two weeks ago and have my first oncology appointment on Friday, May 21. My pathology reports showed the cancer was confined to the tumor removed with no signs of amy vascular invasion. I have been reading a few accounts of TC patients having their only good testicle damaged from radiation, i.e., sterility and not being able to produce testosterone. Frankly, as a single young male this terrifies me. I was told after radiation you are probably 90% cured basically killing off any possible cancerous cells during their infancy. If I am given the option of close surveliance, is it wise to do so? I'm not worried about the minor side effects of radiation such as nausea and fatigue but the permanent side effects worry me greatly. I would greatly appreciate any information from anybody that went through this. Thank you, Ross Levy Ross Levy <lev1@pacbell.net> Sherman Oaks, Ca USA - Wednesday, May 19, 1999 at 08:52:12 (GMT) CHRONIC LT TESITICAL PAIN. 2 DIFFERENT DOCTORS CAN NOT DETERMINE THE CORRECTIVE ACTION. ULTRASOUND DETECTED A GROWTH, BUT THEY SEEM TO THINK THAT IS NOT THE CAUSE FOR MY TESTICAL PAIN AND LOWER BACK PAIN. ANTIBIOTICS AND MORTIN ARE ONLY A TEMPORARY FIX. WHO CAN HELP ME? TJ USA - Tuesday, May 18, 1999 at 19:32:39 (GMT) CHRONIC LT TESITICAL PAIN. 2 DIFFERENT DOCTORS CAN NOT DETERMINE THE CORRECTIVE ACTION. ULTRASOUND DETECTED A GROWTH, BUT THEY SEEM TO THINK THAT IS NOT THE CAUSE FOR MY PAIN AND LOWER BACK. ANTIBIOTICS AND MORTIN ARE ONLY A TEMPORARY FIX. WHO CAN HELP ME? TJ USA - Tuesday, May 18, 1999 at 19:31:03 (GMT) I was diagnosed with TC on the year aniversary of my best friend's death from brain cancer. and it was scarey as hell. but it has become a positive experience. my family and i have been given new hope and motivation for life. as a famous cyclist who has TC once said, "now i only have two types of days: good days and great days." if anyone is scared or wants to chat about the effects of TC, please email me. (wmintun@cwo.com) William Mintun <wmintun@cwo.com> Sacramento, CA USA - Tuesday, May 18, 1999 at 14:20:00 (GMT) I was diagnosed with TC on Christmas Eve of 1992 and had my left testicle removed the same day. It had spread to my lungs and lymph nodes and went thru 3 months of chemo. It is now gone and anyone going thru this needs to be on top of your treatments, take control and read as much as you can, Have a positive attitude and face the cancer head on, if you believe the chemo is good for you and the cancer is what makes you sick, then you're on the right track (not one DR. told me that) make sure you have a CT on your chest, some drs. only give you xrays, the lesions can sometimes be so small that they don't show up on an xray (it happened to me). Since ive spoken to groups of men on the subject and thru my word of mouth have helped others with the disease. If anyone needs encouragement or some tips dealing with chemo I'm happy to help, this is a great website i only wish when i went thru it there was more information. good luck and remember "ATTITUDE is a little thing, that makes a big difference". dave gunnell <dgrglg@aol.com> sandy, ut USA - Tuesday, May 18, 1999 at 07:18:00 (GMT) Thank you for all of you who have helped me put together my talk on TC for the Boy Scouts in my area. The sharing of your experiences have helped my lecture greatly. Thank you. Glenda Glenda M. Trevino <gletrevino@hotmail.com> Sierra Vista, AZ USA - Monday, May 17, 1999 at 21:42:50 (GMT) Hello Ted USA - Monday, May 17, 1999 at 08:50:33 (GMT) I was diagnosed in 1982 and graduated from this course in 1983. For those of you who were just diagnosed, do the math-- that was sixteen years ago. Had embryonal cell mixed with chorio. I had two surgeries, diagnostic/removal plus RPLND.All clear, but then had metastatic tumor in lungs. Scary. Then chemo. No good anti nausea drugs back then to deal with platinol. I thank Dr. Einhorn in Indiana for pioneering the treatment, and all the great docs here. Hey, young guys, I was 29, an Army officer, a runner and still played basketball and baseball. I was bulletproof. Wrong. Not married at the time either. Now I have a great wife, a great job, and two kids of my own (Thanks Dr. Leet for your skilled hands in surgery.) You will get through this. It sucks, but there are many cancer patients out there with things that will hang over their heads for years, or take them out. Not you. You will be free one day. You will remember, but you will be free. And then you'll try to help others as I have done. If you need a lift, send me an e mail. It's a tough road, but it doesn't last too long. Keep going. Scott Cutler <ct@interpath.com> Raleigh, NC USA - Sunday, May 16, 1999 at 03:33:47 (GMT) I've seen two doctors(intern & practioner) both have said right testicle swelling is a hydroseal. No positive for prostate cancer. No positive for testicular cancer, but since then (2-3 months) right testicle is getting larger, hardness in certain areas comes and goes. The question is how can I found out more about hydroseals. Can it lead to cancer? Is it just uncomfortable? What surgery/costs can be done to get back to normalcy? Good website for TC. zinckge <zinckge@yahoo.com> WI USA - Saturday, May 15, 1999 at 22:56:43 (GMT) My husband had his right testicle removed in October 97 (on his birthday!) and then followed up with radiotherapy. All was going well and his check ups had been put down to every 3 months. On a two month trip away he got amoebic dysentery and had pain in his kidney which he got checked out on his return. Nearly 4 weeks later we are near to having confirmed that the seminoma has spread to his kidney although no markers in the blood and his CT in Jan 99 was clear. He will have chemo. We are scared. And probably more this time than before. If anyone has had similar spread can you tell us about it and how it all went. Any tips for surviving chemo??? Helen Cunningam <helen@thecunninghams.screaming.net> London, UK - Friday, May 14, 1999 at 00:56:26 (GMT) On May 4 I had my RO surgery to remove my left testicle. I finally got my pathology and CT scan reports today (a very scary uncertain week of waiting) and was diagnosed with pure seminoma. The cancer was confined to the testicle with no vascular invasion. I'll have to under go about 2.5 weeks of radiation as a precautionary measures. I feel greatful of my prognosis and am praying for those that were'nt as fortunate as myself. I can't tell you how much this web site has educated me about this disease and has given me a better idea as to what my urologist is explaining to me. Can anyone please give some information in regards to banking sperm? I was told my sperm count is much lower because of the recent surgery and isn't wise to bank at this time. I plan on starting my radiation therapy in a few weeks and would love any information regarding sperm banking and the possible long term complication of radiation, i.e., birth defects, etc. My first oncologist appointment isn't until May 27. That seems rather a long time away. Do you have to recover a certain amount of time before you can start radiation? Any answers are greatly appreciated. Thank you. Ross Levy Ross Levy <Levdog26@aol.com> Sherman Oaks, Ca USA - Thursday, May 13, 1999 at 01:23:44 (GMT) I was diagnosed with non-seminoma TC in 1986, when I was 19, and have been cancer free since chemotherapy and a lymph node dissection in 1987. I recently found your site when talking to a friend's nephew, who is in college and has just been diagnosed. The information in this site is an incredible resource. If this had been around in the 80s, my family and I would have been spared much of the anxiety and uncertainty associated with having cancer, undergoing cancer treatments, and finding doctors experienced in TC. After my initial diagnosis and removal of my left testicle, I chose a "surveillance" strategy of periodic CT scans and blood tests. A year later, I realized I had relapsed after feeling a large tumor in abdomen (even though the periodic CT scans taken by the local diagnostic clinic did not pick it up "early.") I finally ended up in the excellent care of Dr. Einhorn and Dr. Williams at Indiana University, who put me on chemotherapy to shrink the tumor and followed it up with the lymph node surgery when the post-chemotherapy x-rays continued to show signs of disease. (After seeing doctors at Sloan-Kettering, University of Texas-Dallas, and in Austin and Atlanta, I cannot stress enough how truly gifted and caring the doctors and staff at Indiana University were.) On the positive note, even after all of the treatment, everything still works, and I am the proud father of two children. Derek McDonald <mcdonald@pobox.com> Austin, TX USA - Tuesday, May 11, 1999 at 23:03:43 (GMT) I'm scheduled for surgery tomorrow (May 12th) to remove my left testicle. Scared? You bet. I've never had a serious injury or illness in 42 years. Until now. I had the blood work and X-rays yesterday and I'm having the CAT scan the 24th of May. I'm not a believer in the supernatural so please don't offer up any prayers. I'll post the results when I get back to work next Monday. Let's keep our heads up! Mike Dahlke <mdahlke@nortelnetworks.com> San Antonio, TX USA - Tuesday, May 11, 1999 at 20:40:18 (GMT) Hi An update since December.I've had and finished my BEP chemo.Scans and blood are all back to normal so effectively that,s it finished with (5 years surviellance to go). Most side effects have now gone but a small cry for help! I had a reaction to Bleomyacin which caused painful swellings in my hands. That went after the treatment stopped but my joints on my fingers are very stiff.My doctor is trying Neproxin but it doesn,t seem to be working and when I raised the matter with my Oncologist she avoided the question. Normally I wouldn,t be overly worried by this but I require dexterity in my job (electronics engineer). Anyone who has info this problem and possible time scale for it to get better please let me know (even if it's permanent damage) Thanks in advance Pete Hughes <pete@homesteadway.freeserve.co.uk> Northampton, UK - Monday, May 10, 1999 at 23:02:56 (GMT) August 3, 19976 I was diagnosed with embroynal carcinoma with seminoma. this started in Nacogdoches. Five days later I was in Dallas at UT health services. Did radiation for 15 days. scheduled lymp removal surgery for October and went back to work. October came, out of 72 nodes 2 came back bad. Chemo was suggested at the time, but I needed a break so I left. Returned to work after 4 or 5 weeks doing pretty good. Then came Feburary, after getting my ususal chest x-ray, I was surprised to here I had spot show up! I was back in Dallas the next day to start chemo ( one week in patient and weekly injections for 3-months then going on maintenance). The spot went away and I'm still here. You guys hang in Mike <B1M2W7@netscape.net> Houston, TX USA - Monday, May 10, 1999 at 19:18:27 (GMT) I am 28 yrs old and was diagnosed with TC on May 4, and had my left testicle removed that evening. I am having a CT scan done on May 11 to see if the cancer has spread. This will determine if I need radiation or chemotherapy. I've been trying to be optimistic that all the cancer was removed during surgery but after visiting this web site it seems the majority of TC patients needed either radiation or chemo. I feel like I'm on pins and needles until I find out on May 12. I'm really scared right now and would love to talk to anyone with TC. My thoughts and prayers go out to anyone dealing with this disease. Ross Levy <Levdog26@aol.com> Sherman Oaks, Ca USA - Saturday, May 08, 1999 at 20:47:17 (GMT) I am a part-time student doing a masters degree in biology on a distance learning course with an organisation called the Open University. This year I am doing a module called "S803: Imaging and Molecules in Medicine. I am required to use the net do do various searches as part of my studies and I have found your site quite helpful. I am, however, having trouble finding molecular structures of drugs on the net, but that is all part of the learning game I suppose. Jacek Frankiewicz <jaf58@student.open.ac.uk> Leicester, Leicestershire United Kingdom - Saturday, May 08, 1999 at 17:28:47 (GMT) I appreciate your site. I was diagnosed with TC and had my right testicle removed last Friday...still recovering. Everything occurred just as your article details. I have a follow-up CT scan in a week and radiation following that. Trying to stay positive. Question, is there any rehab/stretching/exercises to work out the tightness in the area? Philip Morris <philipmorris@earthlink.net> Apex, NC USA - Saturday, May 08, 1999 at 06:03:27 (GMT) I think this a great site. It has helped me greatly with all the data that is contained here. I am facing the removal of my only remaining testical. I go to the doctor today, so I am really nervouse about having no balls! Mark Paku <mspaku@aol.com> Montgomery, iL USA - Thursday, May 06, 1999 at 17:02:55 (GMT) I am 32 years old and was diagnosed with testicular cancer 6 weeks age. I had my right testicle removed April 6, My oldest son's birthday, the best present he could get. I start chemo Monday May 10 and am looking forward to closing this chapter of my life. This web site has been a great comfort through my little bump in the road. Thank you for all the stories and research. Alex Amory <aamory@aol.com> Lake Bluff , IL USA - Wednesday, May 05, 1999 at 00:48:42 (GMT) I think you have a wonderful web site. Fortunately, I did not have Testicular CA, but I was unprepared for the loss of my right testicular from simple R. Inguinal Hernia Surgery. After surgery the right testicle began to swell to about the size of my fist, then it began to shrink, and shrink, until it was gone. The surgeon said that sometimes that happens, but I was unprepared mentally for that complication. It doesn't bother my wife, but I never got use to it -- and it definitely feels different to me. I keep checking your site for information on implants. I plan to have an implant whether by way of a clinical trial or as a regular surgical procedure when devises are ready and approved (however, I am thinking of going out of the country to have this done). My urologist and general practitioner agree that I should have it done since it was unexpected, and a psychological trauma for me, that I can't seem to recover from. I'm just waiting until something safe comes along. I wonder --they've used fake eyes for years without complication, so why not use that type of material as a IT? Anyway, thanks for your site. I wish everyone well who has had Testicular CA, and I think we are all grateful for your web site. John, R.N. <catbooty@erols.com> USA - Tuesday, May 04, 1999 at 13:22:54 (GMT) Diagnosed at 36. Received radiation initially and then chemo when another location was found. I learned you have to take control over your treatments and do your own research. Doctors are human and can make mistakes. T cooper USA - Tuesday, May 04, 1999 at 00:12:35 (GMT) I am a 27 year old from Brisbane, Australia. I was born with only on testical which I have managed to cope with reasonably well. The last week or so I have had a slight pain in my testical, groin and abdomen. I am shit scared that I have TC for obvious reasons. I have not noticed any lump/swelling of my testical or scrotum. The slight pain had been the only symptom. I will go and see my GP tommorow. Any advice? Jake <westjake@hotmail.com> Brisbane, Australia - Monday, May 03, 1999 at 12:56:27 (GMT) I'm 20 yrs from Australia. I have had a very small lump on one of my testicals for years . It has never bothered me and I have felt no pain. Should I be worried??? Jake <buterhighman@hotmail.com> Melbourne, vic Australia - Monday, May 03, 1999 at 03:21:32 (GMT) Im a 30 yr old diagnosed with TC the first of the week. The pathology results indicate it was an Embryonal Carcinoma with Choriocarcinoma. I am wondering what comes next. Is monitoring an option with this type if the markers return to normal and the CT scan and X rays are clear? Is this a viable option? I can deal with a certain amount of uncertainty. When would aditional problems most likely occur if they do? Any help comments advise would be greatly appreciated. Scared as @#$^ in NC jeff < jg.watson@cwix.com> NC USA - Saturday, May 01, 1999 at 05:35:20 (GMT) |