Note: The following list of radiation questions is aimed at
someone that is going to have a radiation treatments or is trying to decide
between radiation and surveillance. He has already been diagnosed with a pure
seminoma tumor, and has had enough tests done to determine that he is not a
candidate for primary chemotherapy (advanced Stage II or Stage III).
Important: You should be having this discussion with a radiation oncologist,
not a urologist.
WHY RADIATION?
- What Stage is my cancer?
- What is the significance of cancer found in the lymph nodes?
- Why is radiation recommended for me?
- Why is it necessary to radiate the lymph nodes?
- What is a port?
- Can you show me where these lymph nodes are and what part of my body would be radiated?
- Do I have any other choice of treatment? (Surveillance? Chemo?)
- If surveillance is an option (If you are Stage 1, it is an option), can I see a medical oncologist before making a decision about the radiation treatments?
- What are the benefits of having radiation?
- What are the risks and side-effects of the treatments?
- What do I have to gain or lose by not having the radiation now?
- Will I be cured?
- If I choose surveillance and the cancer comes back, will I be treated by radiation or by chemotherapy?
- What type of costs am I looking at?
- Have you treated someone for stage and type cancer before? If so, how many?
- What percentage of patients usually respond to this treatment?
- How quickly must I decide about my treatment?
- Will a reduction or delay in treatment reduce my chances of being cured?
RADIATION TREATMENT
- How soon should radiotherapy be started?
- In what form and how often will the treatment be given?
- What kind of radiation are you going to use?
- How does the doctor work out the radiotherapy dose?
- How long will each treatment take?
- How long will the entire course of therapy last?
- Where will I have to go for treatment?
- Who will administer my treatments?
- How often, during treatment, will I see a physician? a nurse?
- Can I drive to and from my appointments?
- Will I need someone to accompany me to the treatments?
- Can I stay alone after my treatments, or do I need to have someone stay with me?
- Can I continue to work, exercise, etc. during these treatments? Are there special precautions I should take while on radiotherapy or afterwards?
- What will it feel like to get treated?
- What type of results should I expect to see with the treatment?
- Will there be tests during my treatment to determine if it is working?
- Are there any medications I should not take while I'm going through treatment?
- What are the precautions or restrictions during treatment? After treatment? (For example, skin creams, lotion, underarm shaving, etc.)
- Are there any activities I should or should not do while I m going through treatment?
AFTER THE RADIATION TREATMENTS
- What happens when the treatment finishes?
- What does it take to say we're done? What is the criteria to stop treatment and go to the monitor phase?
- How can I tell if the treatment is working?
- How long will it be before I feel better and can get back to my normal routine?
- How often are checkups and tests required after treatment is completed and which specialist will manage my care?
- Would you be willing to consult with an expert if a problem arises?
RADIATION RELATED SIDE EFFECTS
- What are the side effects of this treatment?
- Nausea?
- Vomiting?
- Hair loss (will my hair grow back in the radiation port?)
- Low blood cell counts? (anemia: low red-blood-cell count, neutropenia: low count of one type of white-blood cell, low platelets, etc.)
- Diarrhea/constipation?
- Skin changes?
- Incontinence?
- Infertility?
- Pain?
- Sores along the digestive tract?
- Ulcers?
- Fatigue?
- When might these side effects occur?
- How long will the side effects last?
- What can I do to reduce the side effects?
- Will side effects get better/worse/same over the course of treatment?
- What kind of "schedule" can I expect during the radiation treatments (when will I begin having nausea, when will I stop having nausea.)?
- How can I get practical advice in dealing with side effects?
- Could these side effects be life-threatening?
- Which side effects should I report to the health care provider immediately?
- Will my treatment affect driving?
- Will the treatment affect my work/education?
- Will I still be able to look after my family, or will I need help?
- Does radiotherapy make you radioactive?
- Will radiotherapy make my hair fall out?
- How will it affect my sex life?
- If I can have sex during or after my treatment, will my partner be at risk in any way?
- What type of precautions do I need to take?
- Will radiotherapy make me infertile?
- Will I be able to father children after the treatment?
- How can I find out more about the sperm banking service?
- What are the long term side effects of radiotherapy?
- Will I be able to live a normal life when I get older?
RADIATION SUPPORT
- Who can I talk to about problems with sex and fertility?
- Where can we go to get emotional/mental/marital/medical support during treatment? Does the hospital/clinic offer such services?
- I'm worried about what my friends will say. How can I handle that?
RADIATION MISCELLANEOUS
- Can changing what I eat help me recover from my cancer and/or the radiotherapy?
- Is there anything I should avoid?
- Who can I talk to about what I should be eating?
- What are the telephone numbers I should have in order to reach you? the nurse? the hospital?
- When do I next see you?