| The Testicular Cancer Resource Center |
So why are we telling you this? While we don't want you to lose confidence in your doctors, we do want you to realize that due to the relative rarity of this cancer, many doctors simply do not have the experience and expertise needed to deal with some of the complexities involved in its treatment. Only a small percentage of urologists perform a nerve sparing RPLND operation often enough to be considered experienced, let alone expert. Similarly, many oncologists are on uncertain ground administering the normal BEP protocol, let alone treating TC recurrences and advanced metastatic disease. The same can be said for the pathologists that look at the original slides after the orchiectomy. One study found that 32% of the pathology reports evaluated had errors, and 36% of those errors resulted in a change in the treatment or prognosis. In fact, in Scotland they "found that survival rates for testicular cancer at one unit were 10 per cent better than at four others". Even worse,
an EORTC Study found that among poor prognosis patients, those treated at a center that rarely sees this type of cancer had a risk of death almost twice as high as those patient treated at a center that sees a lot of this cancer. Their treatments did not work as well and they suffered from more treatment related problems. There clearly is an advantage in making sure that your doctor knows how to treat this cancer!
Because of these numbers, we are strong believers in getting the right diagnosis from the right source. This may involve getting a second opinion, and it may also mean consulting with an expert in another city (or country!) in order to verify the proper treatment. It may involve having your slides sent to an expert pathologist to verify the histology of the tumor, or it may mean travelling to have the surgery you need done by someone who does it frequently and expertly.
We have compiled the following list of experts in order to help you get the best treatment - you may already be asking "Are these doctors the ONLY ones who know how to treat testicular cancer?!" - certainly not, but these doctors have chosen testicular cancer as their specialty / area of research, and they have been specially trained to treat it. They know what to do, and they are more than willing to help you or your doctor understand the correct treatment options.
If your cancer has recurred after initial treatment, or if the initial treatment did not work, then we strongly encourage you to call one of the doctors on this list!
We hope this list helps you in your TC experience. Please keep in mind that hospitals are constantly changing their websites, so these links frequently break. If that happens or if you have any other feedback, please contact us.
Indiana University, Department of Oncology - phone 317-274-0920 for physician advice or appointments.
They usually respond within 24 hours.
Dr Patrick Loehrer
Dept of Medicine
Phone: (317) 274-0920
Fax: (317) 274-3646
Dr Richard Bihrle
Dept of Urology
Office: WD S320
Phone: (317) 630-7744
Fax: (317) 274-0174
Dr Stephen Beck
Dept of Urology
Phone: (317) 278-9272
Fax: (317) 274-3763
Indiana University, Department of Surgery
Indiana University, Department of Pathology
For pathology consults, send slides to Dr Ulbright at this address:
Clarian Pathology Laboratory
350 West 11th Street, #4010
Indianapolis, IN 46202
The slides should be accompanied by the original pathology report. IU will charge a consultation fee for this service, so include a copy of your insurance information if you want them to bill insurance directly. (Please call and verify this information before sending anything.)
Dr Darren Feldman
Phone: (646)-422-4491
Dr Robert Motzer
Phone: (646) 422-4312
Dr Dean Bajorin
Phone: (646) 422-4333
Dr Joel Sheinfeld
Deputy Chief, Urology Service, William G. Cahan Chair in Surgery
Phone: (646) 422-4311
Dr Brett Carver
Phone: (646) 422-4466
Dr Bedford Waters
University of Tennessee Medical Center
Associate Professor, Department of Surgery
Urologic Oncology
1928 Alcoa Highway
Knoxville, TN 37920
Phone: (865) 544-9254
Fax: (865) 544-9716
Dr Jerome Richie
Chief, Division of Urology
Brigham and Women's Hospital / Dana-Farber Cancer Institute
Harvard Medical School
45 Francis St.
Boston, MA 02115
Phone: (617) 732-6325
Fax: (617) 566-3475
Physician Referral: 1-800-638-6294
Dr Gilbert Brodsky - Pathology
Department of Pathology and Laboratory Medicine
Harvard Vanguard Medical Associates
133 Brookline Ave
Boston, MA 02215
Phone: (617) 421-2350
Dr Timothy Gilligan, M.D.
Cleveland Clinic Taussig Cancer Center
9500 Euclid Avenue
Cleveland, OH 44195
Phone: (216) 444-6833
Dr Christopher Porter
Phone: (206) 223-6772
Dr Paul Lange, M.D.
Chairman, Department of Urology
University of Washington School of Medicine
Phone: (206) 543-3918
Urology Clinic Number: (206) 598-4294
Dr Scott Eggener, M.D.
Assistant Professor of Surgery/Urology
University of Chicago Medical Center
5841 South Maryland Avenue, MC-6038
Chicago, Illinois, 60637
Administrative (Chernise): (773)-702-5195
Clinic: (773)-702-1860
Nurse (Carol): 773-702-2511
Dr Daniel J. Lieber
The Angeles Clinic and Research Institute
2001 Santa Monica Blvd
Suite 560W
Santa Monica, CA 90404
Phone: (310) 582-7900
Dr Mary Gospodarowicz
Professor, Department of Radiation Oncology
University of Toronto
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-4421
Fax: (416) 946-2038
Dr Padraig Warde
Associate Professor, Department of Radiation Oncology, Deputy Chief
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-2122
Fax: (416) 946-4586
Dr Christian Kollmannsberger
Clinical Associate Professor of Medicine
Division of Medical Oncology
British Columbia Cancer Agency
Vancouver Cancer Center
600 West 10th Avenue
Vancouver, BC V5Z 4E6
Phone: (604) 877-6000 x2674
Fax: (604) 877-0585
Professor Jean-Pierre Droz, M.D., Ph.D.
Department of Medical Oncology
Leon Berard Cancer Center
28 rue Laennec
69008 Lyon, France
Phone: +33 478 782 724
Fax: +33 478 782 716
Pr Stéphane Culine, M.D., Ph.D.
Department of Medicine (Oncology)
CRLC Val d'Aurelle
Parc Euromédecine
34298 - Montpellier Cedex 5
France
Phone: +33 4 67 61 31 50
Fax +33 4 67 61 30 22
Professor Alan Horwich MBBS PhD FRCP FRCR
Head, Division of Radiotherapy and Imaging
Royal Marsden NHS Trust
Institute of Cancer Research
15 Cotswold Rd, Belmont
Sutton, Surrey, UK
Phone: +44 020 8661 3274
Fax: +44 020 8643 8809
Dr Robert Huddart
Reader in Urological Oncology
Division of Radiotherapy and Imaging
Royal Marsden NHS Trust
Institute of Cancer Research
15 Cotswold Rd, Belmont
Sutton, Surrey, UK
Phone: +44 020 8661 3529
Fax: +44 020 8643 8809
Dr G.M. Mead MD FRCP Oncology
Medical Oncology Unit
University Hospital Southampton
Tremona Rd
Southampton, SO16 6YD, UK
Phone: +44 23 8079 8639
Fax: +44 23 8079 5176
Dr Michael H. Cullen BSc MBChB MD FRCP FRCR
Consultant and Honorary Professor of Medical Oncology
University Hospital Birmingham
Edgbaston, Birmingham, B15 2TH.
Phone: 0121 627 2444 (Country Code 44)
Fax: 0121 697 8428 (Country Code 44)
Dr David Dearnaley
Professor or Uro-Oncology, Personal Chair of University of London
Division of Radiotherapy and Imaging
Royal Marsden NHS Trust
Institute of Cancer Research, Sutton, Surrey, UK.
Phone: +44 020 8661 3271
Professor John Crown
Oncologist
St Vincent's Hospital
Dublin, Ireland
Dr Gerit Stoter
Oncology
Rotterdam Cancer Institute (Daniel den Hoed Kliniek)
The Netherlands
Phone: +31 010-4391331
Fax: +31 010-4391003
Dr HJ Hoekstra
Division of Surgical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612317
Fax: +31 050-3614873
Dr DT Sleijfer
Department of Medical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612822
Prof. Dr Peter Albers
Direktor der Klinik für Urologie
Universitätsklinikum Düsseldorf
Moorenstrasse 5
D-40255 Düsseldorf
Phone: +49(0)211-8118110
Fax: +49(0)211-8118676
Prof. Dr Jörg Thomas Hartmann
Universitätsklinikum Schleswig-Holstein
Campus Kiel - Medizinische Klinik II
Arnold-Heller Strasse 3
D-24105 Kiel
Phone: +49(0)431-5972484
Fax: +49(0)431-5973590
PD Dr Frank Mayer PD Prof. Dr Carsten Bokemeyer
Klinik für Innere Onkologie und Hämatologie
Universitätsklinikum Tübingen
Otfried-Müller Strasse 10
D-72076 Tübingen
Phone: +49(0)7071-2980650
Fax: +49(0)7071-294374
Direktor II. Medizinische Klinik
Hubertus Wald Tumorzentrum
Martinistrasse 52
D-20246 Hamburg
Phone: +49(0)40-7410 53962
Fax: +49(0)40-7410 58054
Prof. Dr Hans Schmoll
Martin Luther Universität Halle Wittenberg
Kinik für Innere Medizin
Abteilung Hämatologie und Onkologie
Ernst Große Str.40
06120 Halle/Saale
Phone: +49 0345/557 2924
Fax: +49 0345/557 4959
Professor Dr Axel Heidenreich
Direktor der Klinik und Poliklinik für Urologie
Universitätsklinikum der RWTH Aachen
Pauwelsstrasse 30
D-51074 Aachen
Phone: +49(0)241-8089374
Fax: +49(0)241-8082441
PD Dr Marcus Hentrich
Klinik für Hämatologie, Onkologie und Palliativmedizin
Städtisches Klinikum München Harlaching
Sanatoriumsplatz 2
D-81545 München
Phone: +49(0)89-62102663
Fax: +49(0)89-62102443
PD Dr Maria De Santis
3. Medizinische Abteilung
Zentrum für Onkologie und Hämatologie
Kaiser Franz Josef Spital - SMZ Süd
Kundratstraße 3
A-1100 Wien
Phone: +43-1-601912308
Fax: +43-1-601912309
Professor Dr. F. Sedlmayer
Klinik für Radiotherapie und Radioonkologie
Universitätsklinikum Salzburg
Müllner Hauptstr. 48
A-5020 Salzburg
Phone: +43-662-4482-3904
Fax: +43-662-4482-887
Dr. Richard Cathomas
Leitender Arzt Onkologie
Department Innere Medizin
Kantonsspital Graubünden
Loestrasse 170
CH-7000 Chur
Phone: +41-81-2566885
Fax: +41-81-2566668
PD Dr. Silke Gillessen
Leitende Ärztin Onkologie / Hämatologie
Kantonsspital St. Gallen
Rohrschacher Str. 95
CH-9007 St. Gallen
Phone: +41-71-4941092
Fax: +41-71-4946325
Dr Steen Hansen
Department of Oncology, Finsen Institute
Rigshospitalet, Copenhagen, Denmark
Dr Joseph McKendrick
Director of Medical Oncology
Department of Clinical Haematology & Medical Oncology
Box Hill Hospital
Nelson Road, Box Hill 3128
Victoria, Australia
Phone: +61 3 895 3585 (?)
Fax: +61 3 9895 3141
Prof John Levi
Clinical Professor and Director - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
E25 - Royal North Shore Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9926 7448
Mobile: +61 18 243224
Fax: +61 2 9906 4150
Dr Michael Boyer
Clinical Senior Lecturer - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
Clinical Senior Lecturer
C39 - Royal Prince Alfred Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9515 6123
Fax: +61 2 9519 1546
Dr Peter Nash
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9587 4888
Fax: 61 2 9587 4899
Dr Bill Lynch
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9588 2981
Fax: 61 2 9588 2614