- Doug Bank - Riverwoods,
Illinois - TCRC Publisher -
- Diagnosed at age 26 (Oct 1992) with Stage I Non-Seminoma (immature
teratoma, teratocarcinoma, yolk sac tumor). Treated with Surveillance.
Married with 3 kids, all conceived after the cancer.
- Scott - Missouri
- Diagnosed at age 26 (Oct 1995) with Stage I Non-Seminoma (mostly embryonal cell carcinoma).
Treated with RPLND. Married and working as an family physician.
Adopted a newborn baby 6/99 because of TC related infertility.
- Ben Glassner - Denver, Colorado
- Diagnosed at age 24 (May 2000) with Stage II Non-Seminoma (100% Embryonal Cell Carcinoma).
Treated with RPLND, found one positive lymph node. One month after my
surgery I decided to go with preventive chemotherapy. It has been more than a
year now, and I have a clean bill of health.
I travel as a sales manager and pretty much live the same life I lived before
except I appreciate every beer a little more now. And I eat healthy, something
I thought would never happen.
- Matt - Washington
- Diagnosed at age 16 (Nov 1996) with Stage II Non-Seminoma. Treated with
chemo and RPLND. The cancer came back in August 98 and was treated with a
- Lonny Worman - Dresser, Wisconsin
- Diagnosed at age 46 (Apr 1995) with Stage II Non-Seminoma (embryonal,
yolk sac, and immature teratoma).Treated with RPLND and chemo.
Experienced severe breast pain 6-9 months after Orchiectomy, which
included lumps in one breast. Surgery (partial mastectomy) revealed no
tumors, they believe it was all related to a change in testosterone levels.
I am married with no children. Primary hobby is computers.
- Peter - USA
- Diagnosed at age 29 (Dec 1979) with Stage II Non-Seminoma
(embryonal with teratoma and choriocarinoma). treated
with RPLND and chemo. I received my chemo at Memorial Sloan
Kettering and was on the VAB VI protocol. Cisplatin, Bleomycin,
Velban, Cytoxin, Actinomycin D and the kitchen sink, for a year!
- Ryan - USA
- Diagnosed at age 21 (Apr 1996) with Stage I Non-Seminoma. Treated with
adjuvant BEC chemo at MD Anderson.
- Brian Drake - Olympia, Washington
- Diagnosed at age 29 (Jan 1986) with embryonal cell carcinoma
with teratoma. I had an orchiectomy in January 86 and a RPLND in
Februrary 86. Surgery was performed by Dr. Paul
Lange (see list of docs specializing in TC) while he was in Minnesota. I had
retrograde ejaculation for a short time, then full function returned. Five
years of regular chest x-rays and tumor markers afterward. Surgery was hell,
but I would do it again in a minute if necessary. I would be happy to
discuss my experiences with anyone interested.
- Bernt Sulebust - Oslo, Norway
- diagnosed at age 22 (Apr 1991) with Stage IIC Non-Seminoma.
Treated with Chemo (4xBEP) and RPLND. Living together with girlfriend and
works with computer system management (Lotus Domino). Interests are
computers, travel, astronomy/space history and spending time with friends.
- Kevin Kuehler
- Arlington Heights, Illinois
- Diagnosed at age 26 (Mar 1997) with Stage I Non-Seminoma (embryonal
and teratocarcinoma). Treated with RPLND. The cancer
recurred in the lungs in Nov 97. Recurrence treated with chemo. Married
with 1 child and a miracle bun in the oven.
Another cyclist with a nutty lump, or a lumpy nut!
- Ronnie - Israel
- Diagnosed at age 41 (Oct 1992) with Stage II Non-Seminoma. Treated
with chemo and RPLND. Chemo was absolute hell for
me; I was in a wheelchair for the last treatment and had a lot of problems
with vomitting and hearing loss. My wife and my
sense of humor got me through, and the doctors
and nurses could not have been nicer. I'm a bookworm and an avid walker.
I'm married with 2 adopted children, ex-Brit living
- Craig - USA
- Diagnosed at age 25 (1985) with Stage II Non-Seminoma. Treated with
RPLND and 9 cycles of chemo! Battling a recurrence 15 years later...
- John - USA
- Diagnosed at age 31 (Oct 1996) with Stage I Non-Seminoma (embryonal).
Treated with Surveillance.
- Ronan - Israel
- Diagnosed at age 28 (1995) with Stage I Non-Seminoma. Treated
with RPLND. Gay.
- Anthony -
Raleigh, North Carolina
- Diagnosed at age 23 (Oct 1995) with Stage I Non-Seminoma. Treated with
RPLND (with severe complications).
- Eric - Rockville, Maryland
- Diagnosed at age 26 (Dec 1993) with Stage II Non-Seminoma. Treated with Chemo
and RPLND. Treatment was not easy, but it helped to have another TC survivor to
lean on. The most uncomfortable part was realizing that I may be
sterile. I went to the lab and banked sperm. Out of 12 samples,
they were able to get four good ones which were frozen until last
year. It took a few years to regain my fertility, but three years
after the treatment I was told that I was not shooting blanks
- John Cavallaro -
New Jersey -
- Diagnosed at age 33 (May 1997) with stage I Non-Seminoma
(mixed germ cell carcinoma: immature and mature
teratoma, seminoma, embryonal carcinoma, yolk sac and
syncytiotrophoblasts) while in graduate school.
Treated with nerve-sparing RPLND. Unmarried, no children.
- Ron Breland - Houston, TX
- Diagnosed at age 30 (Feb 1989) with Stage II Non-Seminoma, after several
years of landscape pesticide exposure. Treated with 5 rounds chemo (VIP),
followed by RPLND. As a result, started an organic based landscape firm,
which is still going strong. Divorced w/no kids.
- Scott - New York
- Diagnosed at age 39 (Mar 2000) with Stage I Nonseminoma.
Treated with surveillance. To me the RPLND was just not an option.
So what if I go to the doctor 12 times a year? Life has changed.
- Brandon - Portland, OR
- Diagnosed at age 28 (Mar 1998) with Stage I Nonseminoma.
Treated with surveillance. This was a relatively high risk surveillance given
a 99% embryonal tumor, but it has been more than fifteen years without a recurrence!
- Grant - Chicago
- Diagnosed at age 33 (Oct 1999) with Stage I Nonseminoma.
Treated with an RPLND. I would very much like to assist recently (and similarly) diagnosed patients who
may be considering the same treatment options. I am very open to questions from the patient as well as
loved ones about the "entire experience"!
- Louis - Boston & NY
- Diagnosed at age 29 (Jul 1998) with Stage I Nonseminoma.
Treated with Surveillance. I'm gay and HIV+, but have passed
the 2 year cancer free period! It's been a rocky two years, but
life does go on!
- John S - Denver, CO -
- Diagnosed at age 25 (Jan 1997) with Stage I Nonseminoma (100% embryonal with
vascular invasion). Treated with 2xBEP.
- Paul Fredricks - Bethel, CT
- Diagnosed at age 28 (Jul 1991) with Stage II Nonseminoma.
Treated with chemotherapy and a bilateral RPLND. Father of two (before
surgery). Currently giving cancer awareness talks at local high schools.
- Dan Bauer - Ithaca, NY
- Diagnosed at age 21 (Oct 2000) with Stage I Nonseminoma.
Treated with an RPLND at Brigham and Women's hospital in Boston by Dr. Jerome Richie.
So far so good. Currently attending Cornell University.
- Kurt - Eaton, Pennsylvania
- Diagnosed at age 33 (Apr 1998) with Stage I Nonseminoma. Treated with an RPLND.
He had a clean RPLND, but it still came back in his lungs and did not want to
go away. He had 4 cycles of BEP and 3 cycles of High Dose chemo with a stem cell
- Robert - USA
- Diagnosed at age 34 (Dec 1996) with Stage III Nonseminoma. Treated with
bilateral RPLND and 6 cycles of chemo. I have experienced a lot of
complications that I would be happy to discuss. These include bleomycin
side effects, lymphoceles, retrograde ejaculation, sperm banking,
fertility problems, insurance problems, support issues and a divorce! I
am 3 years cancer free and all is well, no, life is very good. Still have
lymphocele problems every now and then.
- Sachin Waikar - Chicago, IL
- Diagnosed at age 32 (March, 2001) with Stage I Non-Seminoma (95% embryonal
with vascular invasion). Treated with 2 cycles of preventative chemotherapy
(platinum and etoposide)--an unconventional, controversial approach--at the
University of Chicago cancer center. Married with one child and hoping to
have more. I spent a lot of time deciding among surveillance, RPLND
surgery, and chemo, and would be happy to discuss what went into this