The Testicular Cancer Resource Center

Welcome to the TCRC's Email Support Network!

Because of the often personal nature of Testicular Cancer, some folks prefer to get some one-on-one advice rather than broadcast their situation to the whole world. To help out in this, we have compiled a list people who are willing to provide confidential TC related support... many thanks to all who participate in this valuable manner of support! And if you would like to join in this effort, please send me a note.

Click on one of the following links to go to the Email Support page appropriate for your situation.

Non-Seminoma
Support
Seminoma
Support
Extragonadal
Support
TC2
Support
Caregiver
Support
Pediatric
Support
Bereavement
Support

Non-Seminoma Support

Doug Bank - Riverwoods, Illinois - TCRC Publisher - Personal Story Link
Diagnosed at age 26 (Oct 1992) with Stage I Non-Seminoma (immature teratoma, teratocarcinoma, yolk sac tumor). Treated with Surveillance. Married with 3 kids, all conceived after the cancer.
 
Scott - Missouri
Diagnosed at age 26 (Oct 1995) with Stage I Non-Seminoma (mostly embryonal cell carcinoma). Treated with RPLND. Married and working as an family physician. Adopted a newborn baby 6/99 because of TC related infertility.
 
Ben Glassner - Denver, Colorado
Diagnosed at age 24 (May 2000) with Stage II Non-Seminoma (100% Embryonal Cell Carcinoma). Treated with RPLND, found one positive lymph node. One month after my surgery I decided to go with preventive chemotherapy. It has been more than a year now, and I have a clean bill of health. I travel as a sales manager and pretty much live the same life I lived before except I appreciate every beer a little more now. And I eat healthy, something I thought would never happen.
 
Matt - Washington
Diagnosed at age 16 (Nov 1996) with Stage II Non-Seminoma. Treated with chemo and RPLND. The cancer came back in August 98 and was treated with a bilateral RPLND.
 
Lonny Worman - Dresser, Wisconsin
Diagnosed at age 46 (Apr 1995) with Stage II Non-Seminoma (embryonal, yolk sac, and immature teratoma).Treated with RPLND and chemo. Experienced severe breast pain 6-9 months after Orchiectomy, which included lumps in one breast. Surgery (partial mastectomy) revealed no tumors, they believe it was all related to a change in testosterone levels. I am married with no children. Primary hobby is computers.
 
Peter - USA
Diagnosed at age 29 (Dec 1979) with Stage II Non-Seminoma (embryonal with teratoma and choriocarinoma). treated with RPLND and chemo. I received my chemo at Memorial Sloan Kettering and was on the VAB VI protocol. Cisplatin, Bleomycin, Velban, Cytoxin, Actinomycin D and the kitchen sink, for a year!
 
Ryan - USA
Diagnosed at age 21 (Apr 1996) with Stage I Non-Seminoma. Treated with adjuvant BEC chemo at MD Anderson.
 
Brian Drake - Olympia, Washington
Diagnosed at age 29 (Jan 1986) with embryonal cell carcinoma with teratoma. I had an orchiectomy in January 86 and a RPLND in Februrary 86. Surgery was performed by Dr. Paul Lange (see list of docs specializing in TC) while he was in Minnesota. I had retrograde ejaculation for a short time, then full function returned. Five years of regular chest x-rays and tumor markers afterward. Surgery was hell, but I would do it again in a minute if necessary. I would be happy to discuss my experiences with anyone interested.
 
Bernt Sulebust - Oslo, Norway - Homepage
diagnosed at age 22 (Apr 1991) with Stage IIC Non-Seminoma. Treated with Chemo (4xBEP) and RPLND. Living together with girlfriend and works with computer system management (Lotus Domino). Interests are computers, travel, astronomy/space history and spending time with friends.
 
Kevin Kuehler - Arlington Heights, Illinois
Diagnosed at age 26 (Mar 1997) with Stage I Non-Seminoma (embryonal and teratocarcinoma). Treated with RPLND. The cancer recurred in the lungs in Nov 97. Recurrence treated with chemo. Married with 1 child and a miracle bun in the oven. Another cyclist with a nutty lump, or a lumpy nut!
 
Ronnie - Israel
Diagnosed at age 41 (Oct 1992) with Stage II Non-Seminoma. Treated with chemo and RPLND. Chemo was absolute hell for me; I was in a wheelchair for the last treatment and had a lot of problems with vomitting and hearing loss. My wife and my sense of humor got me through, and the doctors and nurses could not have been nicer. I'm a bookworm and an avid walker. I'm married with 2 adopted children, ex-Brit living in Israel.
 
Craig - USA
Diagnosed at age 25 (1985) with Stage II Non-Seminoma. Treated with RPLND and 9 cycles of chemo! Battling a recurrence 15 years later...
 
John - USA
Diagnosed at age 31 (Oct 1996) with Stage I Non-Seminoma (embryonal). Treated with Surveillance.
 
Ronan - Israel
Diagnosed at age 28 (1995) with Stage I Non-Seminoma. Treated with RPLND. Gay.
 
Anthony - Raleigh, North Carolina
Diagnosed at age 23 (Oct 1995) with Stage I Non-Seminoma. Treated with RPLND (with severe complications).
 
Eric - Rockville, Maryland
Diagnosed at age 26 (Dec 1993) with Stage II Non-Seminoma. Treated with Chemo and RPLND. Treatment was not easy, but it helped to have another TC survivor to lean on. The most uncomfortable part was realizing that I may be sterile. I went to the lab and banked sperm. Out of 12 samples, they were able to get four good ones which were frozen until last year. It took a few years to regain my fertility, but three years after the treatment I was told that I was not shooting blanks anymore.
 
John Cavallaro - New Jersey - Personal Story Link
Diagnosed at age 33 (May 1997) with stage I Non-Seminoma (mixed germ cell carcinoma: immature and mature teratoma, seminoma, embryonal carcinoma, yolk sac and syncytiotrophoblasts) while in graduate school. Treated with nerve-sparing RPLND. Unmarried, no children.
 
Ron Breland - Houston, TX
Diagnosed at age 30 (Feb 1989) with Stage II Non-Seminoma, after several years of landscape pesticide exposure. Treated with 5 rounds chemo (VIP), followed by RPLND. As a result, started an organic based landscape firm, which is still going strong. Divorced w/no kids.
 
Scott - New York
Diagnosed at age 39 (Mar 2000) with Stage I Nonseminoma. Treated with surveillance. To me the RPLND was just not an option. So what if I go to the doctor 12 times a year? Life has changed.
 
Brandon - Portland, OR
Diagnosed at age 28 (Mar 1998) with Stage I Nonseminoma. Treated with surveillance. This was a relatively high risk surveillance given a 99% embryonal tumor, but it has been more than fifteen years without a recurrence!
 
Grant - Chicago
Diagnosed at age 33 (Oct 1999) with Stage I Nonseminoma. Treated with an RPLND. I would very much like to assist recently (and similarly) diagnosed patients who may be considering the same treatment options. I am very open to questions from the patient as well as loved ones about the "entire experience"!
 
Louis - Boston & NY
Diagnosed at age 29 (Jul 1998) with Stage I Nonseminoma. Treated with Surveillance. I'm gay and HIV+, but have passed the 2 year cancer free period! It's been a rocky two years, but life does go on!
 
John S - Denver, CO - Personal Story Link
Diagnosed at age 25 (Jan 1997) with Stage I Nonseminoma (100% embryonal with vascular invasion). Treated with 2xBEP.
 
Paul Fredricks - Bethel, CT
Diagnosed at age 28 (Jul 1991) with Stage II Nonseminoma. Treated with chemotherapy and a bilateral RPLND. Father of two (before surgery). Currently giving cancer awareness talks at local high schools.
 
Dan Bauer - Ithaca, NY
Diagnosed at age 21 (Oct 2000) with Stage I Nonseminoma. Treated with an RPLND at Brigham and Women's hospital in Boston by Dr. Jerome Richie. So far so good. Currently attending Cornell University.
 
Kurt - Eaton, Pennsylvania
Diagnosed at age 33 (Apr 1998) with Stage I Nonseminoma. Treated with an RPLND. He had a clean RPLND, but it still came back in his lungs and did not want to go away. He had 4 cycles of BEP and 3 cycles of High Dose chemo with a stem cell transplant.
 
Robert - USA
Diagnosed at age 34 (Dec 1996) with Stage III Nonseminoma. Treated with bilateral RPLND and 6 cycles of chemo. I have experienced a lot of complications that I would be happy to discuss. These include bleomycin side effects, lymphoceles, retrograde ejaculation, sperm banking, fertility problems, insurance problems, support issues and a divorce! I am 3 years cancer free and all is well, no, life is very good. Still have lymphocele problems every now and then.
 
Sachin Waikar - Chicago, IL
Diagnosed at age 32 (March, 2001) with Stage I Non-Seminoma (95% embryonal with vascular invasion). Treated with 2 cycles of preventative chemotherapy (platinum and etoposide)--an unconventional, controversial approach--at the University of Chicago cancer center. Married with one child and hoping to have more. I spent a lot of time deciding among surveillance, RPLND surgery, and chemo, and would be happy to discuss what went into this difficult decision.
 


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This page was last updated on Feb 01, 2013
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